Join David Drew MP to support ME awareness on Saturday in Gloucester
Join David in an awareness-raising event tomorrow, Saturday 11 May, at the Eastgate Shopping Centre in Gloucester. Organised by Chantelle Parry of the ME/CFS Friendship Group in Gloucestershire, it will run from 12 noon until 2pm, sharing stories and educating people about the illness.
ME (commonly known as "chronic fatigue syndrome") is an invisible disease that affects 15 to 30 million people around the world, causing severe pain, fatigue and other chronically debilitating symptoms with even the slightest physical or mental exertion. The effects are devastating - 25% of ME patients are housebound or bedbound, and an estimated 75% are unable to work.
Because the disease is invisible, sufferers are sometimes unfairly thought of as simply being lethargic or lazy, but this is far from the truth. In many ways they are missing from their own lives, hence the annual #MillionsMissing protests led by #MEAction.
Jennifer Brea, co-founder of #MEAction, and director of the award-winning documentary, Unrest, says, “This is about more than just a disease. This has become a social justice issue. There simply must be more research funding and appropriate medical education in order to stop this epidemic.”
David Drew MP says, “We need to recognise ME at an early stage so suffers can access that vital help at the most effective point. It is heartrending to read what constituents have written to me, particularly the parents of younger children suffering dramatically from this dreadful condition.”
Earlier this year David spoke out in parliament against cuts to biomedical research and the need to re-write official guidance on how patients suffering from ME should be treated when they approach primary care: